I remember hearing about people who were gluten free. I used to think “that would never be me”, not in a judging way I swear (okay maybe there was just a little judgement). I just never thought I could. I should have just slapped myself right then.
When my oldest son Miles was 2, he used to have constant pain in his knees whenever ambulant. I thought he was making it up to get out of having to walk (I know, I am a terrible parent). Doctors didn’t seem concerned at any of his check-ups and all in all, he seemed like a pretty healthy boy. A “healthy” boy with on and off digestion issues, random hives around his mouth, sleep trouble and nearly constant leg pain. When I look back I wish I could have shook myself and said, “wake up and LOOK woman!”
One day shortly after I had dropped him off at preschool, I got a call that he had just had a seizure. We contacted our pediatrician who recommended a pediatric neurologist. He went through extensive neurological testing only to discover no source or reason for the seizure. Left with no answers and feeling distraught we started to look every where we possibly could for answers. Months later we had a doctor who recommend testing him for a gluten allergy/celiac disease. We finally had our answer, he has NCGS, non-celiac gluten sensitivity, for more info on that you can go the following website: www.celiaccentral.org. Miles needed to come off of all cow dairy products and all gluten.
It took about 1 month for everything to work its way out of his system. Around the 2 month mark he said, “my body isn’t on fire anymore.” When I heard that, my heart hurt and I felt like the worst parent in the world yet overjoyed that we had found our solution at the same time.
It’s been quite a journey over the last 5 years and I have learned so much about having a child in school who is gluten-free. The struggle is really real people. Nowadays all 4 of us eat GF (well my husband mostly does). Miles’ symptoms are gone and he is a happy and thriving 7 year old.
I would love to help those of you who are new to the gluten-free world, especially those with children. Please don’t hesitate to ask me any questions you might have.
For starters, meet my godmother: Carol Kicinski, magazine founder & editor-in-chief, TV chef, cookbook author, and gluten-free recipe developer and all around gluten free goddess. You can check out her website or subscribe to her magazine any time here: simplygluten-free.com
PS – I dream regularly of croissants and crepes.